My wife and I learned two years ago that I had contracted Chronic Hep C. As the disease ravaged my body and mind, I had to take a break from my I.T. carer of over 15 years. Instead of getting better I developed End Stage Liver Disease. My expensive cobra and medications eat away at my limited social security disability.
My wife and I are in our mid 40's were making a very respectable income. My time is running out waiting for a new liver. (I don't have the cash like Steven Jobs obviously does.) I was turned down by the cobra extension because one has to be fired or quit. I was placed on medical leave as a favor from my employer. They did so to give me hope of retaining my career once I am better. So now my cobra will be running out.
Social Security does not even allow me to beg for change which I would gladly do to help my wife and daughters through this sad tragedy. My Cobra is running out, and then I have nothing. I started working when I was 12, and paid taxes all those years.
When my Cobra ends many doors will be closed to me regarding my pending transplant. Less or even no treatments due to high medical costs will further speed up my passing. Until then, I will have to set and watch my loved ones and friends watch me die with no remaining dignity left. Watching my family them struggle over my medications and argue with insurance companies. Seeing the torment my family endures brings my soul so much sorrow. Even more than my disease.
Even my private disability company used the "Pre-existing Condition" clause to cut their ties.
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