I am not sure what exactly to write or how to even begin explaining my story. I like a lot of other American households fall into a range where I make too much for Medicaid or Chips. I am a single mother of 3 amazing young men. We did have insurance while their father was serving in the Military but even that system is flawed as we had to travel 3 hours to another state to get a simple check up for a cold or to coordinate with the primary care provider for all referrals.
My oldest son Malachai has what is diagnosed as a Vein of Galen Malformation with a Arterio-Venous Malformation in his brain. Basically a brain aneurysm that has not bleed, or "popped" yet. I moved into a house 4 blocks from an emergency room in case that ever happens. His health care is a necessity for prevention of his death. To go to a local pediatric neurologist without insurance has typically costs about 9,000 every 3 months for "observation".It requires a cat scan, pediatric neurologist, Pediatric cardiologist,physical fees then to top it all off..the wonderful credit card charges associated with charging this care. This is why he can no longer go. $36,000.00 dollars a year for him to have adequate local care. Now their father has been let go from the Navy due to down sizing & weight restrictions. No more insurance at all. I am a single mother with 3 boys, I make 40,000 a year but I have 3 children to house, clothed, feed, support. I have a mortgage to pay and income taxes are scary. I do not get any rebates back because I am a 1099 contract employee. Meaning I pay my own taxes out of my check, and lose 20% of all income instantly when I file my taxes. Owing the government 9,000 every year. I simply can not afford the $932.00 a month plans for the coverage me and my children need. Not to mention, they all have..preexisting conditions.
My two younger children both require extensive speech intervention due to oral apraxia. Luckily their care is low in cost. To pay for speech therapy, hearing testing, and participate in organized play dates with people in my communities whose children are experiencing the same delays. This is not the care for everyone.
I believe, I believe in families being allowed to receive help with health care and the debts occurred obtaining it. I would literally agree to a no interest loan starting after the child was well, cancer was in remission, etc..what ever the people of this countries families are going through. In the end that is what we are, what we have, and typically how we live. As a family. Whether it is our mothers, brothers, our children, our friends, the people walking down the street. We all have one underlying factor. We all experience the same things, same feelings, at one point or another in time. We all need help. Rich, poor, middle class. I believe it is time to do something about it. I will not lie, I have little hope these days that the things I need to get accomplished will get accomplished in time. It seems it will truly be longer before the change trickles down to the families like me. Who make too much money for help, but not enough money to afford the care. We are literally stuck in limbo. Only time will tell. All this I have written equals one thing in its entirety. It is time for a change.
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